What is cicatricial pemphigoid?

Cicatricial pemphigoid is a rare chronic autoimmune disease that is characterized by erosive skin lesions of the mucous membranes and skin that may also involve the eyes.

How do members experience cicatricial pemphigoid?

Top 5 symptoms reported by people with cicatricial pemphigoid*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for cicatricial pemphigoid*

Who has cicatricial pemphigoid on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 1
40s 0
50s 3
60s 10
70+ 7

Distribution of sex

Sex

Sex Proportion # of patients
Male 4
Female 18

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What is cicatricial pemphigoid?

Cicatricial pemphigoid is a rare chronic autoimmune disease that is characterized by erosive skin lesions of the mucous membranes and skin that may also involve the eyes.



Common symptoms reported by people with cicatricial pemphigoid

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for cicatricial pemphigoid

Let’s build this page together! When you share what it’s like to have cicatricial pemphigoid through your profile, those stories and data appear here too.

Got a question about living with cicatricial pemphigoid? Members in the forum might have the answers.


Compare treatments taken by people with cicatricial pemphigoid

Let’s build this page together! When you share what it’s like to have cicatricial pemphigoid through your profile, those stories and data appear here too.

Got a question about living with cicatricial pemphigoid? Members in the forum might have the answers.



Who has cicatricial pemphigoid on PatientsLikeMe?

  • 0 new patients joined this month
  • 16 say cicatricial pemphigoid is their primary condition

Age
Age Proportion # of patients
<20 0
20s 0
30s 1
40s 0
50s 3
60s 10
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 1
50-59 years 2
60-69 years 2
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 18

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8
Not Diagnosed 0

These charts show data from cicatricial pemphigoid patients who have completed their condition history
Last updated: