What is lipedema?
Lipedema is abnormal symmetrical swelling due to accumulations of fat and fluid located in the tissues just under the skin of the hips and legs. It can be inherited and occurs almost exclusively in women.
How do members experience lipedema?
Top 5 symptoms reported by people with lipedema*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Heavy sensation in leg(s)
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Common symptom
Heavy sensation in arm(s)
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Common symptom
Increased need for sleep
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for lipedema*
Who has lipedema on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 13 | |
| 40s | 13 | |
| 50s | 32 | |
| 60s | 27 | |
| 70+ | 7 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 0 | |
| Female | 91 |