What is long qt syndrome?

Long QT syndrome is a disorder of the heart's electrical activity that can cause a sudden, uncontrollable, and dangerous heart rhythm. It is so named because of the appearances of the electrocardiogram (ECG/EKG), on which there is prolongation of the QT interval.

How do members experience long qt syndrome?

Top 5 symptoms reported by people with long qt syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for long qt syndrome*

Who has long qt syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 5
20s 14
30s 24
40s 36
50s 31
60s 31
70+ 11

Distribution of sex

Sex

Sex Proportion # of patients
Male 23
Female 128

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What is long qt syndrome?

Long QT syndrome is a disorder of the heart's electrical activity that can cause a sudden, uncontrollable, and dangerous heart rhythm. It is so named because of the appearances of the electrocardiogram (ECG/EKG), on which there is prolongation of the QT interval.



Common symptoms reported by people with long qt syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for long qt syndrome

Let’s build this page together! When you share what it’s like to have long qt syndrome through your profile, those stories and data appear here too.

Got a question about living with long qt syndrome? Members in the forum might have the answers.


Compare treatments taken by people with long qt syndrome

Let’s build this page together! When you share what it’s like to have long qt syndrome through your profile, those stories and data appear here too.

Got a question about living with long qt syndrome? Members in the forum might have the answers.



Who has long qt syndrome on PatientsLikeMe?

  • 1 new patients joined this month
  • 89 say long qt syndrome is their primary condition

Age
Age Proportion # of patients
<20 5
20s 14
30s 24
40s 36
50s 31
60s 31
70+ 11
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 17
20-29 years 6
30-39 years 6
40-49 years 9
50-59 years 7
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 23
Female 128

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 64
Not Diagnosed 7

These charts show data from long qt syndrome patients who have completed their condition history
Last updated: